Management of Prader-Willi Syndrome

Foreword I

Foreword II

Preface

Acknowledgments

Contents

Contributors

Introduction

Diagnosis and Genetics

Clinical Findings and Natural History of Prader- Willi Syndrome

Diagnostic Criteria for Prader- Willi Syndrome

Molecular Genetic Findings in Prader- Willi Syndrome

Laboratory Testing for Prader- Willi Syndrome

Medical Physiology and Treatment

Medical Considerations in Prader- Willi Syndrome

Gastrointestinal System, Obesity, and Body Composition

Growth Hormone and Prader- Willi Syndrome

Multidisciplinary Management

Neurodevelopmental and Neuropsychological Aspects of Prader- Willi Syndrome

Speech and Language Disorders Associatedwith Prader- Willi Syndrome

Motor and Developmental Interventions

Educational Considerations for Children with Prader- Willi Syndrome

Tools for Psychological and Behavioral Management

Educational and Social Issues for Adolescents with Prader- Willi Syndrome

Transition from Adolescence to Young Adulthood: The Special Case of Prader- Willi Syndrome

Vocational Training for People with Prader- Willi Syndrome

Residential Care for Adults with Prader- Willi Syndrome

Inpatient Crisis Intervention for Persons with Prader- Willi Syndrome

Social Work Interventions: Advocacy and Support for Families

A National Approach to Crisis Intervention and Advocacy

Advocacy Issues: School Discipline and Expulsion

Advocacy Issues: Sexuality

Appendices

First Published Report of Prader- Willi Syndrome

A Comprehensive Team Approach to the Management of Prader- Willi Syndrome

Growth Charts of Individuals with Prader- Willi Syndrome

Eligibility for U.S. Social Security and SSI Benefi ts for Individuals with Prader- Willi Syndrome

The International Prader-Willi Syndrome Organization

The Prader-Willi Syndrome Association ( USA)

Index